Sunday, August 31, 2008
He said, "Kitty go potty?"
I replied, "No, just mommy."
He proceeds, "Yeah, kitty!! Good job, kitty!!" I guess he didn't believe me.
Saturday morning he saw the cat and said, "Good job, kitty. Kitty go potty!"
He really thinks our cat uses the potty like Aidan does:) I guess it seems logical to an almost 2 year old!
Saturday, August 30, 2008
From the National Down Syndrome Society and the National Down Syndrome Congress:
FOR IMMEDIATE RELEASE
Contact: Sarah Schleider
Governor Sarah Palin of Alaska has been selected as John McCain’s choice for Vice Presidential nominee of the Republican Party. Governor Sarah Palin recently gave birth to her son who has Down syndrome. The Palins knew before their son’s birth that he would have Down syndrome.
Below are tips for the proper use of language for ‘Down syndrome’. The National Down Syndrome Society and the National Down Syndrome Congress encourage all media to use the below language:
Down vs. Down’s. NDSS and NDSC use the preferred spelling, Down syndrome, rather than Down’s syndrome. While Down syndrome is listed in many dictionaries with both popular spellings (with or without an apostrophe s), the preferred usage in the United States is Down syndrome. This is because an “apostrophe s” connotes ownership or possession. Down syndrome is named for the English physician John Langdon Down, who characterized the condition, but did not have it. The AP Stylebook recommends using “Down syndrome” as well.
People with Down syndrome should always be referred to as people first. Instead of “a Down syndrome child,” it should be “a child with Down syndrome.” Also avoid “Down’s child” and describing the condition as “Down’s,” as in, “He has Down’s.”
Down syndrome is a condition or a syndrome, not a disease.
People “have” Down syndrome, they do not “suffer from” it and are not “afflicted by” it.
It is clinically acceptable to say “mental retardation,” but you may want to use the more socially acceptable “cognitive disability” or “cognitive impairment.”
Here is what Harold Pollack had to say on huffingtonpost.com ...
I want to offer a nod across the aisle, one person to another touched by the disability issue. During her pregnancy, she learned that the developing infant she carried would be born with Down Syndrome. She chose to continue her pregnancy, and is now caring for her child.......
....Some women will surely vote Republican because Palin is on the ticket. This would only empower a President McCain to appoint "Constitutionalist" Supreme Court justices promised in the Republican platform who would vote to erode or bluntly overturn women's reproductive rights. I encourage any politically moderate feminist to read the 2008 Republican platform on every matter related to reproductive choice.....
Governor Palin is also mistaken in her support for broader Republican social policies that make it harder for millions of Americans living with physical and cognitive disabilities to get the healthcare and social services they need. If you ask people living with disabilities and their families what they need from government, many will say that they need things Democrats would provide and Republicans would not. They need adequate Medicaid funding. They really need universal health care. And they really need protections for individuals with preexisting conditions. People with Down Syndrome are often eligible for disability programs. Many others with cognitive disabilities are not. Oddly enough, people with cognitive disabilities need a strong Social Security and Medicare program that could free them from the indignities and stupidities of means-tested programs.
Then there are the schools. Many people with disabilities need special education and health services in schools. Democrats have fought for these things. Republicans typically oppose them. Less tangibly, persons with disabilities need an ethic of common provision in this country that is the antithesis of what conservatives and libertarians euphemistically call an ownership society.
All this is for another day. A tough election should not blind us to our common humanity. Anyone who walks the walk in the service of her personal beliefs deserves my friendship. So congratulations, Governor. You don't come close to earning my vote, but you are welcome in my home, any time.
Friday, August 29, 2008
Palin gave birth to their fifth child, Trig, last April. The baby boy has Down syndrome, a genetic abnormality that impedes a child's intellectual and physical development.
"When we first heard, it was kind of confusing," Palin said, according to an account in the Anchorage Daily News. She called the news "very, very challenging."
But she added in a note, imagining what God would say to her family, "Children are the most precious and promising ingredient in this mixed-up world you live in down there on Earth. Trig is no different, except he has one extra chromosome."
Looking forward to the Republican National Convention next week!!
Thursday, August 28, 2008
Brendan, on the other hand, has never been one for laying in bed. Once he's awake he's up for the day. There is too much to do to spend 20 more minutes laying in bed. Lucky for me, he sleeps until 7:30 or 8 every morning. I have never in his life had him fall asleep next to me in a bed. Well, today he is feeling a touch under the weather and running a slight fever. He fell asleep for his nap but woke up after 45 minutes crying really hard. I could not get him to go back to sleep in his crib, so I brought him downstairs and hoped that perhaps he might be willing to lay on the couch with me and have a rest Within a few minutes he actually fell asleep next to me! What a beautiful day to get to cuddle and hug both of my little boys like that! I haven't even seen Brendan sleep before, except for in his car seat, because he wakes up so easily. He looked so gorgeous laying there with those precious rosy cheeks.
I love my boys!!
On another note, Scotte went back to work today and it seems that the kidney stone has passed. We missed him a lot today because he has been off work and home with us since August 18 (vacation and then with the kidney stone). The kids have been asking for him all day, and I feel a little lonely myself.
Down syndrome makes it difficult for the playful, three-year-old Aidan to articulate all the things he wants to say. Now, using PRC’s SpringBoard™ Lite, he “talks” all the time to his preschool teachers, classmates, and friends and family members.
Aidan’s mother Jennifer calls it “Aidan’s lucky day” when his SLP convinced the family “that having a device with a voice output would give Aidan independence in communicating with many people, and that it might increase his speech and language skills.”
In under three months, Aidan progressed from the 8-location to the 36-location display. He now uses his device to request toys, foods, places to go, songs to sing, family members to play with, and many other things, according to his mom. “It has been an amazing transformation for us and our family, and I never would have believed all the research until I witnessed it myself.”
Using his SpringBoard Lite is also spurring Aidan to be more vocal, Jennifer says. “All of the first words he spoke were a result of him repeating what he was hearing on his device. He has always been such a quiet kid, and we love to hear him talking!”
Wednesday, August 27, 2008
He should have pounded four shots of honey and a pint of Robitussin and then climbed into a time machine and journeyed far away from the stage because this show should not have gone on.......Typically when a singer goes on with the show, despite an obvious ailment, the singer's acknowledgement of the distraction after the first song diffuses the distraction. Audience members then pull for the singer to power through every tune and they will wholeheartedly applaud with a raucous combination of sympathy and enthusiasm.
Diamond called himself out not once during the show, which was akin to pretending a house isn't on fire when all four walls are going down in flames around you.
Tuesday, August 26, 2008
Sunday, August 24, 2008
We left for the ER last night at 9pm, and they were really fast; we were out of there by midnight. We then went to an all night pharmacy to fill the medications that were prescribed and it took over 1-1/2 hours to get them filled! Pharmacists and pharmacy techs of the world, you know I love you dearly, but that was pretty crazy to deal with in the middle of the night. To be fair, the poor guy was working all alone at the only all-night pharmacy for miles, but I guarantee that most of us were coming from ER's and were tired and cranky. Well, we were back in bed by 3am.
Hopefully Scotte will recover from this quickly. I am going to try to force him to rest for the next few days. Considering we just had a week of vacation, he is hoping to not have to take off too many days of work!
Saturday, August 23, 2008
Friday, August 22, 2008
Mesmerized by the size of the elephants....
Admiring the tiger sculpture....
Confusing manatees for elephants...
Thursday, August 21, 2008
Tomorrow I have a meeting at Aidan's school to introduce his teacher, aide and SLP to his communication device. We will be taking Aidan with us so he can get reacquainted with his teacher and see his new classroom. I really hope he will successfully use his device at school! Aidan starts school on Tuesday.
Stay tuned for lots of photos to come!
Wednesday, August 20, 2008
All summer long I have been taking the kids to the playground at least every other day. Sometimes it's difficult when I'm alone because they run in opposite directions, and Aidan has needed a lot of help navigating the slide. Aidan is doing so well now at our particular playground because there are stairs up to the slide instead of a ladder. This past week I was actually alone at the playground with them on a couple of days. Instead of making them take turns on the slide so I could keep them safe, I decided to try letting them both out of the wagon at the same time. They did so awesome! They both listened to me the whole time! I watched them go up the stairs, then I would wait at the bottom of the slide for them to come down. It is so nice to finally be at this point where they are getting to be so independent!!
Tuesday, August 19, 2008
A few days ago we took the kids out to dinner at El Vaquero, our favorite Mexican restaurant. (In fact, that's where Scotte and I went for dinner on our second date.) Aidan was a brave little boy and tried chips and salsa for the first time. After one bite that's all he wanted to eat for dinner! He has always been very picky about food. He is a great eater, but he is often hesitant to try something new. Lately, however, he has been a brave little boy and eating lots of new things. We took some photos with Scotte's phone. It did not occur to me to take our camera out to dinner with us! Brendan loved the chips, too, but Brendan likes almost everything. Aidan's most recent food adventure was at the Dougherty Lake Party on Saturday. Scotte was eating a baked potato and Aidan decided he liked the potato skins...Don't worry, Scotte cut some up for Aidan to eat after he kept lunging at the plate! He is also eating radishes lately, which mommy also loves.
Monday, August 18, 2008
Aidan just wanted to play with Grammy and smother her with kisses...
Jacob looked so cute sitting in the adirondack chair just like mommy....
And Pap Pap kept the kids happy in the sand box...After we played outside, Pap Pap kept Aidan, Jacob and Brendan while Grammy, Glenn Joe, my sister and I went shopping at Target. Thanks, Dad, for even changing Brendan's poopy diaper. The kids loved getting to play with you, and we loved shopping without 4 kids.